Neonatal Home Care
Neonatal home care includes a variety of care and rehabilitation services for medically fragile infants, spanning nursing, clinical respiratory care and equipment, apnea monitoring, infusion, enteral therapy, and nutrition.
Home Medical Equipment
A variety of specialized equipment is provided to help improve a child’s quality of life, such as oxygen, apnea monitoring, ventilator management, nebulizers, child-size walkers, wheelchairs, hospital beds, orthopedic equipment and other medical supplies.
These rehabilitation services assist children with cognitive, developmental and physical disorders, and are treated by physical therapists or occupational therapists.
Pediatric infusion services involve clinical pharmacist consultation and skilled nursing care to assist families in administering intravenous products and medications. Therapies include but are not limited to antibiotics, anticoagulants, biologicals, blood clotting factor, catheter care, chemotherapy, enteral therapy, growth hormone, hydration, inotropic therapy, IVIG, pain management, steroids, transplant therapies and total parenteral nutrition.
We also provide specialty services for children with injuries, gastrointestinal disorders, pulmonary diseases, and blood and immune system diseases.
The Wings program is a home-based pediatric program in the St. Louis area serving children and their families while they cope with an acute, chronic or terminal illness. Care is provided on an intermittent visit basis by a team of specialized pediatric staff including: registered nurses, social worker, chaplain, expressive therapist, music therapist, volunteers and a medical director. The same team can provide palliative home care or hospice care for children and their families, providing a seamless transition from one to the other, if needed.
The Wings pediatric hospice program focuses on children with a terminal illness, to bring peace and comfort to the child and family by not only managing physical symptoms, but to provide psychosocial and spiritual support for families during these last moments. The Wings hospice team provides a variety of activities, information, resources and services that can help the families celebrate life and make memories. Care is individualized for each family and the Wings medical director is available to direct care for the child or to assist the child’s own physician in managing care. Hospice services include nursing, social work, chaplaincy, expressive therapy, music therapy, and bereavement support.
Pediatric Palliative Home Care
We offer comprehensive care for children and their families dealing with life-limiting or chronic complex conditions, including services such as pain and symptom management, skilled nursing, social work services and transition to community resources.
Music therapists help to support families through the many changes that come with an illness. Music can help assist in relaxation, elevate mood and provide opportunities for emotional expression for patients and their siblings.
Expressive therapists use creative activities such as art, play, books and writing to support patients and siblings in expressing and processing emotions surrounding the course of illness as well as learning coping tools.
Lumina Life Review
Lumina Life Review offers patients, both adults and pediatric, the opportunity to preserve the stories, values, ideals and experiences that define their lives. In telling their stories, many patients feel a sense of completion and realization of what they have accomplished and how they have mattered, perhaps for the first time. The program is offered free of charge through BJC Hospice and the Wings program to patients and their families.